Monday, June 21, 2010

Sensory Disorder and Institutionalized beginnings

'Children who have been adopted are at increased risk for sensory problems, with those adopted from overseas orphanages at significantly higher risk. The conditions in these orphanages vary greatly, but all too often facilities have limited resources, poor nutrition, lack of sensory stimulation, and limited social interactions that can lead to developmental delays, medical problems, emotional difficulties, and yes-sensory issues. Many children placed in overseas orphanages may have been born prematurely or with low birth weight to begin with. So it's a double whammy to be predisposed to problems and then be placed in an institutional environment. What's more, the biological mother may have been malnourished and had limited or no access to prenatal care. So much-but certainly not all-depends on prenatal factors, birth, and environment.

Sensory problems make adjusting to a new family and a new culture even harder. Katie lived in a Chinese orphanage for eight months, where she had limited sensory experiences: a monotonous daily routine, and rarely being held, rocked, cuddled, feeling different clothing, being carried around in someone's arms or moving in a stroller or car, rarely being outdoors, being bottled propped, and looking at the same bare walls and toys month after month.

She certainly wasn't used to being hugged and smothered with kisses by her adoring new parents, getting bounced on someone's lap, being pushed around the park on a sunny day looking at animals at the petting zoo with the sound of a fire truck in the background and lots of people laughing and talking and brightly colored toys dangling from her stroller. Her brain and body never had that kind of exposure, and she hadn't yet built the neural connections for that kind of thing. '

Out of proportion reactions: over or undersensitivity to touch, sounds, sights,
movement, tastes, or smells

• Bothered by particular clothing fabrics, labels, waistbands, etc.
• Avoids or excessively craves intense movement — slides, swings, bouncing, jumping
• Gets dizzy easily-or never at all
• Seems clumsy or careless
• Often “tunes out” or “acts up”
• Poor attention and focus
• Uncomfortable in group settings
• Very high or very low pain threshold
* Easily distracted
* Social and/or emotional problems
* Activity level that is unusually high or unusually low
* Physical clumsiness or apparent carelessness
* Impulsive, lacking in self control
* Difficulty making transitions from one situation to another
* Inability to unwind or calm self
* Poor self concept
* Delays in speech, language, or motor skills


***It makes me sad to know that Lucy falls into this situation. She was not held or played with and hardly given any food to eat for 20 months of her little life. Add to that a painful surgery in China that probably left her in a hospital crib for days with no one to soothe her scared little self.

I guess I am angry today because of too many eye rolls from parents on a playground or people giving me advice on how to parent that have not had to deal with a child that with as many strikes against them as Lucy has. She can not be parented the same way as a child that has been loved and held and played with since being born. She is impulsive and busy and has some hard times with kids her own size. She is also funny and sweet and loves to sing and dance.

It also makes me sad that many family and friends have not taken the time to really get to know her. I am constantly disappointed at the lack of people that take time out of their schedule to just play with her or visit her. She gets so excited to see her family and friends and I feel sad that she has been neglected time and again.

Since I am her momma, the one person in this world that has promised to love her the most, I will make sure that she overcomes her harsh beginnings. It is not easy but we will get there, hopefully.

4 comments:

Anonymous said...

Tonya, for what it is worth, in the short time that Iris and I got to know Lucy, we fell head over heals in love with her, and easily saw her for the wonderful person that she is. If others cannot see her in that wonderful way, then that is their loss. We think that you and John are doing a wonderful job parenting her. We miss Lucy and you and John all dearly and wish you the best.

Always your friend,
Joel

jackie said...

Aww Ton, that's just not fair. Lucy is the greatest little firecracker and you guys are such loving parents to her. I will admit she tires me out, and my lazy butt might not be able to deal with her the way you guys do. But she's got the right parents for sure, nobody loves her or can give her everything she needs like you guys do.
I hope I've never made you feel like you aren't doing an awesome job or that Lucy is somehow not measuring up or if I've given unsolicited advice somewhere along the line.(Um...you know my latest and greatest parenting moments...sooo...) Other parents on the playground will be jerks no matter what, and as for family not visiting or getting to know Lucy it's their loss. :( Lucy won't dwell on it, she's on to the next adventure so don't let it bother you too much if you can. YOu can't control what other people do but you can control how you react/deal with it ya know.
Don't know what else to say right now. I hope you can overcome these feelings for now and focus giving your little Lucy the best, which you always do!! Much love, jay

steviestephandmialarue said...

Ton, Lucy could have no one better to help her overcome these things thsn you and John...She loves you both so much and is just so happy to be with her mom and dad. For every trying moment Stevie Mia and I have spent with Lucy, there are so many others when she does something she knows will make you laugh with a twinkle in her eye, kisses your boo boo's for you with such gentleness, or puts on an enthusiastic singing show=)...Every parent gets looks sometimes ,and lots of unwanted advice...try to ignore them. People judge without knowing the whole situation, you are doing great, Lucy is growing into a beautiful loving big girl! Love you all lots, Steph

Anonymous said...

besides that she is three for heavens sake. that all balances out the fact she doesn't whine (maybe cuz she just goes ahead). you are free to ignore my advise, just look how my kids turned out. (i love them too though)