Saturday, September 20, 2008

a lil grumpy, but still groovin

so, she had a little rough day today. a bit more complaining than yesterday, but i guess we have to expect a measure of that. she did just have surgery 2 days ago. her codeine works some, but i thought/hoped it would knock her out better than it is proving. she only sleeps for about an hour at a time, waking up crying and fussing for quite a while before sleeping again. tonya has gotten a little more sleep then me in the past three nights, but not much. i am crawling on about 5 hours total since thursday.

we are finding this to be the case, and this is really written for other cleft palate families out there - everything is sticking to the roof of her mouth. i do not know what it is, but no matter what she eats, it stays up there, and then we see it there hours later. like.. a lot of food. full noodles, chunks of grapes, egg... everything. kind of like when we eat peanut butter. maybe we as adults clean off the roof of our mouth with our tongue when we eat more than we think, and since she never really used her tongue/roof of her mouth before, she has to learn to do so. i have this bottle of water and i tip her back at blast the roof of her mouth with it. needless to say, she hates that. but i do not want all that up there. whats the harm? i don't know, maybe it will rot or something, or dissolve her stitches faster of something. i just don't know why it is staying up there like we are feeding her glue. she is a strong lil kid. i just hate to see her so uncomfortable.

But then she has her good moments here - her strong personality does shine thru. on thursday night, way late, she was joking around with me in the room. try to play peek-a-boo, shake her head 'no' and giggle when i would ask her something. last night, she was rocking out to her musical cell phone, and i grabbed the camera for the tail end of it -

2 comments:

Unknown said...

very cute. We hope to see her again soon.

Tracy and Jeremy

lucy'scousin said...

Awww...we love her and miss her so much already! I really miss her little "lala's" Hope she is feeling better and sleeping better today. Thanks for the videos, keep them coming. Working on pictures for you, maybe I hold them hostage until I get pics from you guys? Thinking about it...